Miss me? I'm not supposed to apologize for not maintaining my blog schedule. It's considered poor practice. I'm sorry anyway.
Lots and LOTS happening.
FIRST AND FOREMOST: My mom had her 3 month follow up PET scan last Friday. Yesterday, she was told the area is responsive. I don't remember what the exact words were but her appointment is next week so I'll get copies of the reports. Bottom line, I was hoping for "stable." I'll take stable. To hear responsive was great news. Also, her liver enzymes are stable. She was given a full dose of medication for the first time since March and they did not spike. More good news. Very thankful. And thanks to all the tweeps who sent love my way when I took that to twitter (while mom was still talking to me).
Second and important!! METAvivor. If you are able to help in any way, please read the original blog post and contact CJ. In fact, even if you READ the original post, go back. There is a video interview with CJ that I embedded into the post after it was originally published.
Little help, big help, in between help.... many hands lighten the load. We are still developing the program. Be patient and if you have ideas, we will be all ears. CJ (on the right) is in charge of this national effort. I'd like to believe that this photo of our FIRST real life meeting is what sparked the idea to take the effort nationwide. We need to raise awareness about Metastatic Breast Cancer and we need to see metastatic disease properly funded. Urgency.
And, while I'm on the research thing...... PLEASE consider signing the petition at All Trials. It's worth a click. All Trials Reported--ALL Results Registered. Read. That's not the present protocol and there is information to be gleaned, even from "failed" trials. Read, Sign, Share?
Tomorrow, I am giving a social media presentation in the afternoon to some friends, prostate cancer advocates I met at AACR. In the evening, I will be on a panel at the Health Care Pioneers meeting. Scroll. An exciting healthcare innovation panel. Have you taken Medivizor for a test drive? No? Click. Upper right. It's getting better and better. Continues to impress.
And while I'm at it.... how about Health of Women Study? Did you join yet? No?? GO. And check the Army of Women studies, too. See if you qualify for any of those. It works. Just look.... I'm in this study which was closed rapidly! We MUST take this in a new direction. I'm tired of the same old same old. It's not moving quickly enough for me. Let's try some other avenues.
All for now. I left you with lots of assignments. All important. Are you with me???