It's May 14th. Tomorrow is the final voting day for the Pink Well Challenge. The day after that, I'll have to fill the space above the posts with a plea for something else. I need something upon which to focus. This challenge has been my cause since I realized we had the power to use our voices to get funds for METAvivor. Vote today. Vote tomorrow. Vote three times today and three times tomorrow. Send the link to everyone you know. Let's get a BIG push for LOTS of last minutes votes. It's important.
Above the plea for votes is The Clock. It's Deadline 2020. It's the initiative of the NBCC, the National Breast Cancer Coalition. I returned home from the 2012 Advocacy Summit last Tuesday night. I vowed to make noise wherever I could. This blog is a pretty noisy place for me. I need some help. Your Help.
First of all, each state was challenged to produce a number of signatures on The Petition to the President. If you have NOT signed the petition, I encourage you to do so. You can submit your signature electronically. NBCC will see to it that your name is included. If you happen to be at ANY event where you might have a captive audience, why not consider printing out the petition form. Several signatures can go on one paper. Mingle with the crowd. Is there anyone among us who does NOT want to see the complete demise of breast cancer. Honestly. It's become pandemic and I don't really care whether or not it truly fits the medical definition of pandemic. It's pandemic. Because I said so. So sign the damn petition.
Step two. We need to get signatures on the Accelerating the End of Breast Cancer Act. That would be the signatures of ALL congressional representatives. Is your representative on this list? Clearly, if your state isn't on the list, it's a fair assumption that your rep didn't sign the thing. After lobbying on the hill (that sounds so damn important, now doesn't it?????), I can safely say that NO representative wants to be seen as "anti-woman," and there is no disease that screams WOMAN better, louder, pinker than breast cancer. It's highly likely your representative isn't aware the bill is out there and that his/her signature is absolutely essential. It's up to YOU to tell him/her. (We DO need to come up with a metrosexual word as this his/her, him/her, s/he, wo(men) is getting annoying.... it distracts me when I'm writing.... Just sharin' ....)
Back to those signatures, IF your state is on the list and you are not sure about YOUR representative, NBCC makes it very simple. Fill in the blanks. The message will be transmitted through that page to the proper representative. You will see the name of your representative as soon as you complete the form. I'm going to play Let's Make A Deal. If it turns out that YOUR rep didn't sign this yet, leave their name in the comments section. I'll happily find them on twitter, I'll start a "twit storm" and soon the entire state will know that a Serious Woman's Health Issue is being ignored by Representative So and So from the Great State of Such and Such.
We will get the signatures. I got your back. One of my workshops last weekend was all about using social media to get the message out. You think it can't be done? There's a global breast cancer organization still dealing with fallout. That demise was a direct result of places like Twitter and Facebook (and the blogs, too!) keeping the story alive. Social media made sure the story had legs and SM was the big machine moving those legs like a hamster in a wheel. And then, there's Kony 2012. You can read about it but thanks to Social Media, in a 25 day span from when the video was released in March, the thing was viewed more than 86 MILLION times on You Tube. All because ONE person posted the video and knew how to engage an audience and compel that audience to keep it going.
My fellow New Yorkers: We have only one representative whose name is NOT on that bill. Jose Serrano from the South Bronx. Missing. I'm already on it. The twit storm has begun. I'll be more than happy to continue the twit brigade. Send.Me.Your.Inkless.Your.Unsigned.Your.Clueless. It's an election year. Trust me. The politicos need to pander to us. We are not a "special interest" group. We are women. Women have breasts. The number one risk factor for developing breast cancer? You are a WOMAN. Red or blue, ultra liberal or uber conservative and everywhere in between, putting a deadline on breast cancer it something that crosses all.
Your assignment for the next couple of days.....
1-METAvivor votes today and tomorrow.
2-Sign the presidential petition (and print out a few pages to haul around with you if you are so inclined).
3-Make sure your congressional representative has signed the Accelerating the End of Breast Cancer bill. If not, WHY NOT????
Demand answers. They have jobs thanks to our votes. They are OUR voice. They should be representing the concerns of their constituents. If they can't, come November, be sure to tell them to take a hike. That's how the system works and it's always a good idea to play nice. And if you can't get cooperation, you can always work towards satisfaction. Vote 'em out......
I've done my part, AnneMarie. I've voted and I've signed. As a patient-advocate for lymphedema, I'm passionate about these political causes. Kudos to you for stepping out there and making a difference, instead of those who are just limping for the cure. xxReplyDelete
Limping for the cure! I love that. Did you see the #Occupy the Cure T shirt? I think it's hysterical and I THINK I may have to buy one!! Thanks, Jan. And I applaud you for making a difference for lymphedema patients. My mom had to purchase a sleeve (out of pocket) and fighting with the Medicare is on my list of things to do. My sister, who only had sentinel nodes removed also has a mild issue. I had no idea removing just sentinel nodes could create an issue. This is typical of "it could happen" but mostly "it won't" UNLESS you happen to be on the wrong side of a statistic.Delete
No one from Indiana has signed this bill. My representative is Joe Donnelly.ReplyDelete
I am sooooooo disappointed..... but soooooooo not surprised. *sigh*
Well..... Joe Donnelly will be getting tweets from me..... And, I'll rally all the tweet gang to gang up on Indiana reps. THANK YOU!!!Delete
OK.... I just sent a tweet which I hope will be seen by ALL in his "tweet stream".....Delete
Follow up to anonymous...... One rep from Indiana is now on the bill. Not Donnelly, but I'll keep tweeting... And, Jose Serrano from NY is now on it too making NYS 100% represented. I'll tweet my thanks now!ReplyDelete
AnneMarie- Rep. Paul Ryan is the ONLY Wisconsin Rep that hasn't signed. Tweet away! Thanks! BarbReplyDelete
Well, Barb..... I'm going to the most up to date page to double check he hasn't signed.... it'll be on twitter in half a sec!!! THANKS!!!!! xoxoxDelete
Here's what I just sent:Delete
.@RepPaulRyan How abt a shout out 2 women by supporting HR3067 2 end #breastcancer @Deadline2020. All of ur WI colleagues already signed!
Now let's see what happens!
Perfect! Thank you my friend!Delete